Electronic Resources on Huntington's Disease, 1990-1999

This document is no longer being maintained in terms of adding new resources. However, information on existing resources will be maintained if possible. If you discover a link on this page which doesn't work, please notify Renette Davis by clicking here, giving the new address if you know it.

"2nd Annual Jay Peddy Memorial Raffle." http://www.renettedavis.com/2nd.html

"10 Easy Ways to Help an HD Family." http://www.renettedavis.com/10easy.html

"10 Facts About Family Caregivers." Available on the Internet at: http://www.renettedavis.com/facts.html

17th International Meeting of the World Federation of Neurology Research Group on Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://prospero.fmc.flinders.edu.au/hd_conference.html

"20 Steps to Help Caregivers." Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/steps.html

Adams, Sue. The Life and Times of a Person With Huntington's Disease. http://angelwhispers51.home.icq.com/

American Society for Neural Transplantation. Address: http://www.neuraltransplant.org/

Ashizawa, Tetsuo, M.D., "Advances in Understanding of the Disease Mechanisms." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp1.html

Ashizawa, Tetsuo, M.D., "New Treatment Strategies." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp8.html

Australian Huntington's Disease Association (Vic) Inc. Mode of access: Internet and World Wide Web. Address: http://www.ahda.asn.au

"Babe's Brain." From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nlpig.htm

Baker, Deborah. "Sharing A Disease." http://www.hdac.org/deborah.html

Baker, Deborah. "What Huntington's Disease is Like for Me." Address: http://www.renettedavis.com/deb.html

Bales, Tammy S. "Wondering What the Future Holds." http://www.renettedavis.com/wonder.html

Barinaga, Marcia. "An Intriguing New Lead on Huntington's Disease." http://www.interlog.com/~rlaycock/scimar96.htm

Bavley, Alan. "Abortion opponent hopes fetal tissue transplant will halt the progression of Huntington's disease." Electronic version available at: http://www.kcstar.com/news/stories/fetal7.htm

"Beatitudes for Friends and Family." http://www.renettedavis.com/beatitud.html

"Behavioral Problems in Huntington's Disease." http://www.kumc.edu/hospital/huntingtons/behavior.html

"The Benefits of Nutrition in HD." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/nutrition.html

Bishop, Robert. CureHD Foundation.http://www.curehd.org/

Blakeslee, Sandra. "Protein culprit acts to cause Huntington's." Mode of access: Internet and World Wide Web. http://www.interlog.com/~rlaycock/nyt963.htm

Boer, G.J. "Ethical Guidelines for the Use of Human Embryonic or Fetal Tissue for Experimental and Clinical Neurotransplantation and Research." http://www.bm.lu.se/~nectar/eth.1.html

Bradlee, Monica. "Happy Birthday to Me!" Electronic version at:http://www.renettedavis.com/birthday.html

Bradlee, Monica. "One Family's Way." Electronic version at:http://www.renettedavis.com/way.html

"Brain Bank Information." http://www.renettedavis.com/brainban.html

"Brain Disorder Treatment Hailed." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/LAtimes2.htm

Bruni, Laura. "HD Patients' Symptoms Vary." Mode of access: Internet and World Wide Web. Address:http://www.renettedavis.com/symptoms.html

Bruni, Laura. "Huntington's Family Link Discovered Early." http://www.renettedavis.com/link.html

Bruni, Laura. "Living with Uncertainty." http://www.renettedavis.com/living.html

Caldwell, Tom. "1999 National Convention Recap." Address: http://www.renettedavis.com/1999nat.html

"Can You Install Love?" http://www.renettedavis.com/canyou.html

"Catalog: Publications and Videotapes." (HD resources available from Huntington's Disease Society of America) Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/catalog.nclk

"Choreographing Mice - A Breakthrough!!" From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nlmice.htm

Church, Loretta. "Another Five Minutes." http://www.hdac.org/loretta.html

Clinical Trials Listing Service. http://www.centerwatch.com/MAIN.HTM

"CoenzymeQ10 (COQ10)" Earth Source Address: http://www.liontex.com/escoq10/

Collins, Lois. "Generations of Tears: Genetic Disease Stalks a Utah Family." The Deseret News. Address: http://deseretnews.com/dn/view/1,1249,115008324,00.html

"Conference Recap." http://www.renettedavis.com/conferen.html

"Coping with Caregiver Grief." Address: http://www.renettedavis.com/coping.html

"DNA Direct." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/dna_direct.html

"Dancing Cheek-to-Cheek." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/dancingc.htm

"Dancing to a Cure." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/dancingt.htm

Davis, Renette. "Articles on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/articles.html

Davis, Renette. "Audio-visual Materials on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/audio.html

Davis, Renette. "Bibliography of Fetal Cell Transplantation." Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/fetal.html

Davis, Renette. "Bibliography of Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/bib.html

Davis, Renette. "Books on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/books.html

Davis, Renette. "Electronic Resources on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/electron.html

Davis, Renette. Huntington's Disease Information. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/

Davis, Renette. "Mailing List for Huntington's Disease." Mode of access: Internet and World Wide Web. Address:http://www.renettedavis.com/mailing.html

Davis, Renette. "Neurosurgical Horizons in the Treatment of Huntington's Disease: From the Laboratory to the Clinic." Summary of presentation by Dr. Kathleen Shannon and Dr. Jeffrey Kordower. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/horizons.html

Davis, Renette. "Pamphlets on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/pams.html

Davis, Renette. "Plays on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/plays.html

Davis, Renette. Review of A Caregiver's Handbook for Advanced-Stage Huntington Disease by Jim Pollard and others. http://www.renettedavis.com/caregive.html

Davis, Renette. Review of Devil's Dance by Richard R. Karlen. http://www.renettedavis.com/devils.html

Davis, Renette. Review of Faces of Huntington's by Carmen Leal-Pock. http://www.renettedavis.com/faces.html

Davis, Renette. Review of Frameshift by Robert J. Sawyer. http://www.renettedavis.com/frame.html

Davis, Renette. Review of Mapping Fate by Alice Wexler. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/mapping.html

Davis, Renette. Review of A Physician's Guide to the Management of Huntington's Disease by Adam Rosenblatt, M.D., Neal G. Ranen, M.D., Martha A. Nance, M.D., and Jane S. Paulsen, Ph.D. http://www.renettedavis.com/physicia.html

Davis, Renette. Review of Red the Rose, Sharp the Thorn by Elton and Lorene Archer. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/rose.html

Davis, Renette. Review of Saint Vitus' Dance by Jill Rubalcaba. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/saint.html

Davis, Renette. "Theses on Huntington's Disease, 1990-1999 " Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/theses.html

"A Day at the Races." http://www.renettedavis.com/day.html

"Disability Issues." From Caring for People with Huntington's Disease. Available on the Internet at: http://www.kumc.edu/hospital/huntingtons/disability.html

Drellishak, Renee. "Genetic Testing." Available on the Internet at: http://www.renettedavis.com/testing.html

Dubinsky, Richard [et al.] Caring for People with Huntington's Disease. Mode of access: Internet and World Wide Web. Address:http://www.kumc.edu/hospital/huntingtons/index.html

Dubinsky, Richard, M.D. "Home Safety in Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/safety.html

Dubinsky, Richard, M.D. "School Report." Kids can ask questions on Huntington's Disease and Dr. Dubinsky answers them. Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/school_report.html

Dunn, Sharon. "Survivor's guilt." Poem. Electronic version available at http://www.renettedavis.com/guilt.html

Dutton, Jeannine. "Huntington's Disease." Poem. Available on the Internet at http://www.renettedavis.com/disease.html

Eagle, Kaaren, and Oleg Kopyov. "Early Postoperative Results in Ten Huntington's Disease Patients Following Transplantation of Fetal Striatal Tissue (2/97)." Electronic copy available at: http://www.renettedavis.com/early.html

"Encyclopedia Britannica Heralds Discovery of the HD Gene." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/britanni.htm

Facing Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://neuro-chief-e.mgh.harvard.edu/mcmenemy/facinghd.html

"Fact Sheet: Huntington's Disease." From Family Caregiver Alliance. Address: www.caregiver.org/fs/fs_hunt.html

"Funding Available Through the Hereditary Disease Foundation." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/fundinga.htm

"A Garden of Hope for HD: Illinois State HD Conference." http://www.renettedavis.com/garden.html

"General Information About Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.connect.org.uk/merseyworld/glaxo/huntsfacts2.html

"General Meeting Recap" (Illinois Chapter, HDSA, March 20, 1999) Address: http://www.renettedavis.com/general2.html

"Genetic Clue to Huntington's Disease Found." Mode of access: Internet and World Wide Web. Address: http://web.mit.edu:1962/tiserve.mit.edu/9000/31133.html

"Genetic Testing for Huntington's Disease." http://www.renettedavis.com/genetic2.html

"Genetic Testing for Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/genetictesting.nclk

"Genetics of Huntington's disease." Available on the Internet at: http://www.kumc.edu/hospital/huntingtons/genetics.html

Good Samaritan Hospital. Mode of access: Internet and World Wide Web. Address: http://www.goodsam.org/

Grill, Allan, CRC, MFCC. "Resource & Services Update." HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/7a.htm

Guild Community Healthcare NHS Trust. Address: http://www.nahat.net/guild/index.htm

Guttman, Mark. Summary of journal article "Cleavage of huntingtin by apopain, a proapoptotic cysteine protease, is modulated by the polyglutamine tract" by Goldberg, Y.P. et al. which appeared in Nature Genetics, Aug. 1996 (v. 13, no. 4) pp. 442-449. Available on the Internet at: http://www.interlog.com/~rlaycock/abs001.html

Hardt, Phil. "HD, Marriages and Relationships." http://www.hdac.org/phil.html

Hardt, Phil. "What Huntington's Disease is Like for Me." Address: http://www.renettedavis.com/phil.html

Harold. "A Remembrance of Wayne." Poem. http://www.renettedavis.com/wayne.html

"HD Families Fortunate to Have Nobel Laureate Join Search for the Cure." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/nobellau.htm

HD Lighthouse. Address: http://www.hdlighthouse.org/

"HD Testing Confidentiality." Address: http://www.renettedavis.com/hdtest.html

HDSA Nucleus. Newsletter of the Huntington's Disease Society of America, Northern California Chapter. Electronic version at:http://table.jps.net/~wuf/curehd/nucleus/index.html

"HDSA's Research Grant and Fellowship Program." Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/grant.nclk

"Health Insurance Reform." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/healthin.htm

Henahan, Sean. "Huntington's Disease Protein Found." Mode of access: Internet and World Wide Web. Address: http://outcast.gene.com/ae/WN/SU/hunting.html

Hereditary Disease Foundation. Mode of access: Internet and World Wide Web. Address:http://hdfoundation.org/

Hersch, Steven M., MD, Ph.D., "Neural Transplantation for Huntington's Disease." Available on the Internet at: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

Hilgenbrinck, Tad. "We Have No Choice." Poem. Address: http://www.renettedavis.com/we.html

"Hints for Writing to Your Legislator." Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/hints.html

Hodgson, Dave. "A Message from our Prez." (Hopes & Dreams, HDSA Illinois Chapter, Summer 1999) Address: http://www.renettedavis.com/message.html

Hodgson, Dave. "A Message from our Prez." (Hopes & Dreams, HDSA Illinois Chapter, Fall 1999) Address: http://www.renettedavis.com/message2.html

Hopes & Dreams. Newsletter of the Huntington's Disease Society of America, Illinois Chapter. Electronic version of selections at:http://www.renettedavis.com/hopes.html

Hopes: Huntington's Outreach Project for Education, at Stanford. Address: http://www.stanford.edu/group/hopes/

The Huntington Society of Canada. http://www.hsc-ca.org

Huntington Study Group. http://www.huntington-study-group.org/

Huntington's Dance Foundation. http://www.huntingtonsdance.com/home.html

"Huntington's Disease." From Caring for People with Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/instruction/medicine/neurology/hd.html

"Huntington's Disease." From Centre for Rare Disorders, National Hospital, Norway. Available on the Internet at: http://rhpc205.uio.no/ssss/English/Disorder/ED_hunt.htm

"Huntington's Disease." From Hackersons web site. Address: http://www.hackers.demon.co.uk/hd.com.html

"Huntington's Disease." From MEDCEU. http://www.medceu.com/tests/huntington.htm

"Huntington's Disease." From National Institute of Neurological Disorders and Stroke (NINDS). Mode of access: Internet and World Wide Web. Address: http://www.healthtouch.com/level1/leaflets/10494/ninds060.htm

"Huntington's Disease." From United States Navy. Available on the Internet at: http://www.nmcp.med.navy.mil/neurolog/dzhuntin.htm

"Huntington's Disease Activities of Daily Living." http://persoweb.francenet.fr/~mondor/huntadl.htm Also available at: http://geocities.com/Pentagon/Base/1284/UHD.html

Huntington's Disease Advocacy Center. http://www.hdac.org/

Huntington's Disease Association. Mode of access: Internet and World Wide Web. Address:http://www.connect.org.uk/merseyworld/glaxo/huntsfactsin.html

Huntington's Disease Association, North West Lancashire Branch. http://members.aol.com/hdanwlancs/

Huntington's Disease Association of Ireland. http://indigo.ie./~hdai/

"Huntington's Disease CAG Repeat Sizing." http://www.genetest.com/hd.htm

Huntington's Disease Clinic. From Dept. of Neurology, Baylor College of Medicine. Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/hunt1.html

Huntington's Disease Home Page. http://www.macalester.edu/~psych/whathap/UBNRP/Huntington/huntindex.html

"Huntington's Disease Research Focuses On Killer Gene Model." From National Institute of Neurological Disorders and Stroke. Electronic version at: http://www.healthtouch.com/level1/leaflets/ninds/ninds061.htm

"Huntington's Disease - Research Highlights." Mode of access: Internet and World Wide Web. Address: http://www.nih.gov/ninds/healinfo/disorder/huntingt/hdreport.htm

Huntington's Disease Society of America. Mode of access: Internet and World Wide Web. Address:http://www.hdsa.org/

Huntington's Disease Society of America, Georgia Chapter. Address: http://www.akorn.net/~svc/hdsa/

Huntington's Disease Society of America, Greater Los Angeles Chapter. Mode of access: Internet and World Wide Web. Address: http://members.aol.com/hdsala/hdsala.html

Huntington's Disease Society of America, Illinois Chapter. Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/illinois.html

Huntington's Disease Society of America, Massachusetts Chapter. Mode of access: Internet and World Wide Web. Address: http://neuro-www3.mgh.harvard.edu/hd/hdindex.htm

Huntington's Disease Society of America, Mid-Michigan Chapter. Mode of access: Internet and World Wide Web. Address: http://www.iserv.net/~hdsamich/index.html

Huntington's Disease Society of America, Minnesota Chapter. Mode of access: Internet and World Wide Web. Address: http://www.adverworld.com/ID/0015/2105/

Huntington's Disease Society of America, New Jersey Chapter. http://hdsanj.org/

Huntington's Disease Society of America, Northeast Ohio Chapter. Mode of access: Internet and World Wide Web. Address: http://www.lkwdpl.org/hdsahome.htm

Huntington's Disease Society of America, Northern California Chapter.See HDSA Nucleus, Newsletter of the Northern California Chapter.

Huntington's Disease Society of America, Western PA Chapter. Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/wphdsa.html

"Huntington's Disease Transplantation Project." From MRC Cambridge Centre for Brain Repair. Address: http://www.brc.cam.ac.uk/people/sbd/hdprog.htm

Huntington's Helpful Links. http://geocities.com/Pentagon/Base/1284/index.html

Huntington's Society of Canada, Ottawa Chapter. Mode of access: Internet and World Wide Web. Address: http://www.comnet.ca/~bfraser/jtmunn/hunthome.htm

"Illinois Chapter Schedule of Events for Fiscal Year 1999/2000." http://www.renettedavis.com/illevnts.html

"Illinois State HD Convention Planned for April of 2000!" Address: http://www.renettedavis.com/ill2000.html

Immen, Wallace. "Hope for brain disease, scientist says." Electronic version available at http://www.interlog.com/~rlaycock/globe1.html

"Insurance Strategies for the HD-Affected Family." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/hd_insur.txt

International Huntington Association. http://www.huntington-assoc.com/

Isacson, Ole, M.D.-Ph.D., James M. Schumacher, M.D., Terrence W. Deacon, Ph.D, Nadia Haque, Ph.D., Stephen Tatter, M.D., Ph.D., Anna-Liisa Brownell, Ph.D., M., Lindsay Burns, Ph.D., Wendy R. Galpern, Paul Borghesani, Celeste LeBlanc, Amy Spiegel, Andrina Ngo. "Neural Systems: Dynamic Mechanisms Involved in CNS Regeneration and Degeneration." Available on the Internet at: http://neurosurgery.mgh.harvard.edu/oi-lab.htm

"JAMA Reviews Alice Wexler's Mapping Fate." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/jamarevi.htm

Jacques, Deane B., MD, Oleg V. Kopyov, MD, PhD, and Kaaren S. Eagle, PhD, "First Results of Fetal Striatal Transplantation in Huntington's Disease. (April, 1996)" On Neurology Web Forum under title: Experimental Fetal Transplants.Mode of access: Internet and World Wide Web. Address:http://dem0nmac.mgh.harvard.edu/neurowebforum/HuntingtonsDiseaseArticles/
ExperimentalFetalTransplantsf.

Jankovic, Joseph, M.D., "Clinical Presentations of Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp2.html

Jankovic, Joseph, M.D., "Current Medical Treatment of Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp4.html

Joffe, Leon. "December Evening." Poem. Available on the Internet at: http://www.renettedavis.com/december.html

Joffe, Leon. "Malaysia - October 1996." Poem. Available on the Internet at: http://www.renettedavis.com/malaysia.html

Joffe, Leon. "Spring Fever." Poem. Available on the Internet at: http://www.renettedavis.com/fever.html

Joffe, Leon. "To Pitta." Poems. Electronic version at:http://www.renettedavis.com/pitta.html

Johnson, Keith A. The whole brain atlas. Cambridge, Mass. : Harvard Medical School, 1995. Machine-readable data. Case 11: Huntington's disease. Mode of access: Internet and World Wide Web. Address: http://www.med.harvard.edu/AANLIB/home.html

Keller, Robin D. "Remote Smoker." Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/smoker.html

Kieburtz, K., Shannon, K., "HSG Position Statement on Experimental Surgical Treatments in HD." Electronic copy available at: http://www.renettedavis.com/hsg.html

Kingsbury, Gayle. "Watching." Address: http://www.renettedavis.com/watching.html

Kinney, David. "Doctors Slow Huntington's in Mice." (Instructions for accessing online version.) Address: http://www.renettedavis.com/doctors3.html

Kokemor, Rebecca. "Facing the Conspirator Within." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/conspirator.html

Kressly, Esther Neufeld. "A Love Story." Electronic copy available at: http://www.renettedavis.com/lovestor.html

Lange, Herwig W. "Neuroprotective treatment in HD." Mode of access: Internet and World Wide Web. Address: http://dem0nmac.mgh.harvard.edu:80/neurowebforum/HuntingtonsDiseaseArticles/
NeuroprotectivetreatmentinHD.ht

The language of biotechnology explained (1). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos1.html

The language of biotechnology explained (2). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos2.html

The language of biotechnology explained (3). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos3.html

The language of biotechnology explained (4). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos4.html

The language of biotechnology (in brief). Available on the Internet at: http://www.scicomm.org.uk/biosis/mini-glo.html

Laycock, Rob. "Building awareness around the world." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/internat.html

Laycock, Rob. "HD societies providing support." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/5soc.htm

Laycock, Rob. "Hot Topics!" Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/hot.html

Laycock, Rob. Huntington's disease. Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/2nd.html

Laycock, Rob. "Issues of patient care." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/care.html

Laycock, Rob. "Summaries of Huntington's disease journal articles." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/summ.html

Leal, Carmen. "A Heart As Big As Alaska." http://www.hdac.org/marie.html

Leal-Pock, Carmen. Cure Huntington's Disease. http://writerspeaker.com/Cure.html

Leal-Pock, Carmen. "Feeding Tube - Additional Information." Available on the Internet at: http://www.renettedavis.com/tube2.html

Leal-Pock, Carmen. "My refuge." Electronic version available at http://www.renettedavis.com/refuge.html

Leal-Pock, Carmen. "Sure Steps to Caregiver Burnout." http://www.renettedavis.com/sure.html

Leal-Pock, Carmen. "Trusting God." Available on the Internet at: http://www.renettedavis.com/trusting.html

Leal-Pock, Carmen. "Why me?" Poem. Electronic version available at http://www.renettedavis.com/why.html

"Legal Planning for Incapacity." http://www.renettedavis.com/legal.html

Leonard, Katie P., M.S., "Guidelines for Presymptomatic Huntington's Disease DNA Diagnosis." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp5.html

"Life After Testing Positive." http://www.hdac.org/gerry.html

Lists of HD Resources. Compiled by people on the Mailing List for Huntington's Disease. Available at: http://www.renettedavis.com/lists.html

"Living the Facts: Kathy's Story." http://www.homestead.com/living_the_facts/story.html

Logan, Cynthia. "I Can Still Care." Address: http://www.renettedavis.com/ican.html

"Long Term Care for the HD Patient." By Narva, Caring Wife of HD Patient. Address: http://www.renettedavis.com/longterm.html

MGH Huntington's Disease Unit. (Massachusetts General Hospital) Mode of access: Internet and World Wide Web. Address: http://132.183.145.103/units/huntington.html

Marez, JoAnne, "Fate Smiled." From the January 26, 1997 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.renettedavis.com/fate.html

Marez, JoAnne, "Fighting a Family Curse." From the November 13, 1996 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.renettedavis.com/fighting.html

Marez, JoAnne, "Neurotransplantation Latest Stab at Incurable Brain Disease." From the November 13, 1996 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.renettedavis.com/neuro.html

Maugh, Thomas H., "Brain Disorder Treatment Hailed." From the Los Angeles Times, Thursday, March 28, 1996. Electronic copy available at: http://www.interlog.com/~rlaycock/LAtimes2.htm

McCarren, Mike. Huntington's Disease (HD) Information on the Internet. Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/

"Meet Your Board Members - Barbara Greer, Past Vice President and Current Board Member." http://www.renettedavis.com/barbara.html

"Meet Your Board Members: Maryann Moynihan." http://www.renettedavis.com/meet.html

"Meet Your Board Members - Mollie Simon, Treasurer." http://www.renettedavis.com/mollie.html

Miller, Jean. "Feeding Tube." Available on the Internet at: http://www.renettedavis.com/tube.html

Miller, Jean. HuntDiseaseFAQS. Address: http://endoflifecare.tripod.com/huntdiseasefaqs/

Miller, Jean. Huntington's Disease - Jean's Sites. Address: http://huntingtonsdiseasejm.tripod.com

Miller, Jean. Huntington's Disease Support Information. Address: http://endoflifecare.tripod.com/huntingtondiseasesupport/

Miller, Jean. "If I Can't Talk, Am I Still Here?" Poem. Electronic version available at: http://www.renettedavis.com/talk.html

Miller, Jean. "A Letter from my Heart." Electronic version available at: http://www.renettedavis.com/letter.html

Miller, Jean. "A Prayer." Poem. Electronic version available at: http://www.renettedavis.com/prayer.html

Miller, Jean. Speaking Out - Living with HD. Address: http://clix.to/speakingout

Miller, Jean. "Welcome to the Hunt-Dis Mailing List!" Address: http://ddi.digital.net/~promo/hunt.html

Moskowitz, Carol, RN. "Beds and Alternatives." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/bedding.html

Moynihan, Maryann. "Nite at the Races Recap." Electronic copy available at: http://www.renettedavis.com/nite.html

Moynihan, Maryann. "Surfing the Internet." Electronic copy available at: http://www.renettedavis.com/surfing.html

NECTARhttp://www.bm.lu.se/~nectar/NECTARINDEX.html

"Needed: Help with a Study." http://www.renettedavis.com/needed.html

Nemec-Wies, Sheri. "I Will Remember For You." http://www.renettedavis.com/iwill.html

Network of European CNS Transplantation and Restoration (NECTAR). Mode of access: Internet and World Wide Web. Address:http://www.bm.lu.se/~nectar/NECTARINDEX.html

Neurology Web Forum.http://dem0nmac.mgh.harvard.edu/neurowebforum/neurowebforum.html

Neuroscience-Net. Address: http://www.neuroscience.com/

"New California Law Focuses on Huntington's Disease." Mode of access: Internet and World Wide Web. Address:http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/californ.htm

"New HD Protein Found." Mode of access: Internet and World Wide Web. Address:http://ivory.lm.com/~mccarren/winter_96/research.html

"New Theory on Cause of Huntington's Disease." Available on the Internet at: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

"Newsletter to Feature New Section Dedicated to Teens and Youngsters." http://www.renettedavis.com/newslet.html

Northern Ireland HD. Address: http://northernirelandhd.tripod.com/

OMIM *143100 Huntington Disease; HD. Mode of access: Internet and World Wide Web. Address:http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?143100

"On Huntington's Disease." In Memory and Honor of Eva Engel and June Hill. Poem by Judy. Electronic version available at: http://www.renettedavis.com/judy.html

"One Person CAN Make a Difference ... especially if it is Roger Herren of Abingdon, Illinois." http://www.renettedavis.com/one.html

Orr, Dorothy, R.S.W., "Action Plan for Caregivers." Electronic version available at: http://www.interlog.com/~rlaycock/careg.htm

Peters, Bryon. "Road to a Cure." Electronic version available at: http://www.interlog.com/~rlaycock/bryon.html

"Pharmacy Perspectives: An Interview with Martha Paula, MEd, PharmD Drug Education Coordinator, Kaiser Permanente." http://www.renettedavis.com/pharmacy.html

Polito, Peggy. "Visiting Your HD Person in a Nursing Home." Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/winter_95/visit.html

Pollard, Jim. CureHD.com http://www.curehd.com/

Pollard, Jim. "Looking Beneath the Veil." http://www.renettedavis.com/looking.html

Pollard, Jim. "Your Hope Chest." HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/8b.htm

Pratt, Heather. "Living with HD." Available on the Internet at: http://www.renettedavis.com/living2.html

"Predictive Testing for HD." Mode of access: Internet and World Wide Web. Address: http://www.circ.uab.edu/sergg/s95/hd_test.htm

"Primplantation genetic testing for Huntington Disease and certain other dominantly inherited disorders." Address: http://www.givf.com/pgt_huntingtonv.cfm

Price, Mary. "Going for the Cure." Report of the 11th Annual Convention of the Huntington's Disease Society of America, June 28-30, 1996, Minneapolis, Minnesota. Electronic version available at: http://www.renettedavis.com/going.html

Price, Mary. "Speech Therapies for Persons Living with HD." Report on presentation by Karen Corcoran, speech-language pathologist from the Inova Mount Vernon Outpatient Neuro-Rehabilitation Center. HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/2a.htm

Price, Mary. Summary of journal article "Direct Amplification of the CAG Repeat of Huntingtin Without Amplification of CCG" by Bond, C.E. et al. which appeared in Clinical Chemistry, v. 42, no. 5 (1996) p. 773-774. Available on the Internet at: http://www.interlog.com/~rlaycock/abs_cag.html#BOND

Pue, Les. "President's Letter." HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/1a.htm

"Pumping Axokine." From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nlpump.htm

"Quotes to Soothe the Soul." http://www.renettedavis.com/quotes.html

Rademacher, Joan. "Comprehensive Care in Bay Area." HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/3b.htm

"Regeneron and Medtronic to Collaborate on Potential Treatment for Huntington's Disease." Mode of access: Internet and World Wide Web. Address:http://www.businesswire.com/webbox/bw.062796/128649.htm

"Reports on Conferences and Meetings Relating to Huntington's Disease." http://www.renettedavis.com/reports.html

"Research in The Center for Neuroscience." Available on the Internet at: http://cns.utmem.edu/Research.html

Resources for Daily Living with Huntington's Disease. Available at: http://www.renettedavis.com/daily.html

Resources for Huntington's Disease. Massachusetts and New Hampshire. Mode of access: Internet and World Wide Web. Address: http://www.rehabnet.com/hunting.htm

Richards, C. Sue, Ph.D., "Molecular Diagnostic Testing for Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp7.html

Roberson, Judy. "National Convention Happenings." HDSA Nucleus (Northern California Chapter Newslettter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/1b.htm

Roberts, Ronald T. "Ode to HD Research." Available on the Internet at: http://www.renettedavis.com/ode.html

Ross, Christopher, M.D., Ph.D., "Hopkins Scientists Find New Piece of HD Puzzle." Available on the Internet at: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

Rush-Presbyterian-St.Luke's Medical Center, The Section of Movement Disorders. Address: http://www.rush.edu/patients/neuroscience/movement.html

Saltus, Richard. "Genetic Clairvoyance." Available on the Internet at: http://www.renettedavis.com/clairvoy.html

Sando, Julie. "The Cliff and the Choice." Poem. Address: http://www.renettedavis.com/cliff.html

Sando, Julie. "A Dog Named Katie." Address: http://www.renettedavis.com/dog.html

Sando, Julie. "Huntington's Disease." From Suite 101.com. http://www.suite101.com/welcome.cfm/5410

Sauer, Katie. "Dear Dad." Poem. Available on the Internet at: http://www.renettedavis.com/dad.html

Sauer, Katie. "Winter." Poem. Available on the Internet at: http://www.renettedavis.com/winter.html

Schulman, Joseph D., Susan H. Black, Alan Handyside, and Walter E. Nance. "Preimplantation Genetic Testing for Huntington Disease and Certain Other Dominantly Inherited Disorders." Address: http://www.givf.com/pgt_huntingtonv.html

"Scientists Narrow Down Location of The Huntington's Disease Gene." From National Institute of Neurological Disorders and Stroke. Electronic version at: http://www.healthtouch.com/level1/leaflets/ninds/ninds074.htm

Scott, Ross. "Computer Games and Huntington's Disease." Available on the Internet at: http://www.renettedavis.com/computer.html

Searle, Jeff, MS. "Communication Strategies for those with Huntington's disease." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/communication.html

Searle, Jeff, MS. "Eating and Swallowing." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/swallowing.html

"Serendipity." (article about being tested) Electronic version at: http://ivory.lm.com/~mccarren/n_ca/serendipity.html

"Sexuality and Huntington's Disease." Address: http://www.renettedavis.com/sex.html

Shapira, Stuart K., M.D., Ph.D., "Clinical Genetics of Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp3.html

Shay, Michael Paul. "1999 John Hersey High School Graduation Speech." Address: http://www.renettedavis.com/1999john.html

Silver-Koplo, Ginny. "Telephone/Answering Machine." Electronic version at: http://www.renettedavis.com/phone.html

South Africa Huntington's Disease Home Page. Mode of access: Internet and World Wide Web. Address: http://www3.fast.co.za/~francop/hd0001.htm

"Spring Brunch Recap." From Summer '96 issue of Hopes & Dreams, newsletter of the Illinois Chapter, Huntington's Disease Society of America. Electronic version available at: http://www.renettedavis.com/spring.html

"Stages of Caregiving." http://www.renettedavis.com/stages.html

Steinberg, Megan. "Daddy's Little Girl." Poem. Address: http://www.renettedavis.com/daddy.html

Stepping Stones. Newsletter of the Huntington's Disease Society of America, Western PA Chapter. Electronic version of selections at: http://ivory.lm.com/~mccarren/winter_96/

"The Striatal Project." From MRC Cambridge Centre for Brain Repair. Address: http://www.brc.cam.ac.uk/people/sbd/strgraft.htm

"Study Underway." http://www.renettedavis.com/study.html

"Suggestions for Managing Behavior of People with HD." http://www.renettedavis.com/suggest.html

"Suggestions for Managing Behavior of People with HD." Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/behavior.html

Testing Services. Address: http://www.athenadiagnostics.com/site/product_search/test_description_template.asp?id=60

Tips for Daily Living with Huntington's Disease. Available at: http://www.renettedavis.com/tips.html

Torrecilla, Montse, Corea de Huntington. Address: http://e-huntington.tripod.com/

"Tracking Huntington's Disease." Available on the Internet at: http://nce.nserc.ca/books/geneeng.htm

"Transplantation Workshop Update." From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nltrans.htm

"Transplanted cells may give new hope for Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/transpla.htm

"The Treaty." http://www.renettedavis.com/treaty.html

UK Psychiatrists Huntington's Disease Group. Address: http://www.cotteridge.com/hd/opening.htm

"Understanding Huntington's Disease Through Clinical Studies." From National Institute of Neurological Disorders and Stroke. Electronic version at: http://www.healthtouch.com/level1/leaflets/ninds/ninds062.htm

"Unified Huntington's Disease Rating Scale (UHDRS) - Motor Section." Mode of access: Internet and World Wide Web. Address:http://www.micronet.fr/~mondor/uhdrs.htm Also available at http://geocities.com/Pentagon/Base/1284/UHD.html

UPADH: Uni˜ao dos Parentes e Amigos dos Doentes de Huntington. http://www.geocities.com/upadh2000/

"An Update on Fetal Cell Transplantation for HD Patients." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/fct.html

"Wanted: Raffle Gifts/Donations for Illinois State HD Convention 2000." Address: http://www.renettedavis.com/wanted.html

Ward, Patricia A., M.S., "Impact of Direct HD Mutation Diagnostic Technology on Genetic Counseling." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp6.html

Weiner, Susan. "Genetic Testing: Perils of Cracking the Code." Mode of access: Internet and World Wide Web. Address: http://www.renettedavis.com/genetic.html

"What is Huntington's Disease?" From Huntington's Disease Society of America. http://www.hdsa.org/about/about.pl?whatishd

"What's New in HD Research." Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

"When Obstacles Get You Down." Address: http://www.renettedavis.com/when.html

The Whole Brain Atlas http://www.med.harvard.edu/AANLIB/home.html

Wilkinson, Lou. "Life is changing." Poem. Electronic version available at http://www.renettedavis.com/life.html

Wilkinson, Lou. "Serenity - where are you?" Poem. Electronic version available at http://www.renettedavis.com/serenity.html

Wilkinson, Lou. "What Huntington's Disease is Like for Me." Address: http://www.renettedavis.com/lou2.html

Wilson, Wanda. My Huntingtons Disease Family (Peters). http://members.aol.com/_ht_a/niftygram/myhomepage/index.html

Yager, Jan. "The 5 Major Time Wasters." Address: http://www.renettedavis.com/5major.html

Zanko, Andrea, M.S. "DNA Direct." HDSA Nucleus (Northern California Chapter Newsletter) Summer 1999. Address: http://table.jps.net/~wuf/curehd/nucleus/summer99/5a.htm

Created by Renette Davis. Please send corrections or additions to Renette by clicking here.

Last updated: Dec. 1, 2010