A mailing list devoted to Huntington's Disease was started by Storm King, a graduate student in psychology at St. John's University, in March 1996. As of February 1997, there were over 200 members. Some have HD, some have tested positive, some are at-risk, some are caregivers, and some are doctors or genetics counsellors. They are a wonderful group of people - all trying to help each other with information and support.
Often called on-line discussion groups, mailing lists allow individuals who are interested in similar topics to communicate with each other. To participate in a mailing list, you first subscribe to the list by sending a special command to the computer where the list is maintained. Once you are signed on, you can send messages to the list and they will automatically be distributed to everyone else on the list.
All you need in order to participate in a mailing list is email access. You subscribe to the list by sending an email message. You will then get a message back telling you that your subscription has been received and asking you to send a confirmation to make sure your email address works ok. After you reply to that message you will get a message telling you your subscription has been accepted and giving you instructions on how to send messages to the list, how to set various options, and how to unsubscribe from the list. After that, you can send messages to the list and you will receive, through email, copies of all messages which are posted to the list.
To subscribe to the Huntington's Disease mailing list, go to:
Fill in your email address and your name. You will receive an email message with instructions on how to confirm that you want to join.
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Last updated: Dec. 4, 2010