Books on Huntington's Disease, 1990-1999


Compiled by Renette Davis

Archer, Elton. Red the rose, sharp the thorn. Longview, TX : Hudson Printing & Graphic Design, 1995. 149 p. Names of all people and the small towns changed.

Behavioral neurology of movement disorders. New York : Raven Press, 1995. xix, 341 p. Series: Advances in neurology, v. 65. Includes bibliographical references and index.

Bishop, Jerry E., Waldholz, Michael. Genome: The story of the most astonishing scientific adventure of our time--the attempt to map all the genes in the human body. New York : Simon and Schuster, 1990.

Chiu, Edmund. Caring for persons with Huntington's Disease. 2nd edition. New York : Huntington's Disease Society of America, 1991.

Clinical genetics handbook. 2nd ed. Boston : Blackwell Scientific Publications, 1993. x, 614 p. Includes bibliographical references (p. 567-568) and index.

The Code of codes: Scientific and social issues in the Human Genome Project. Edited by Daniel J. Kevles and Leroy Hood. Boston : Harvard University Press, 1992.

Current therapy in neurologic disease.4th ed. St. Louis : B.C. Decker, 1993. xviii, 427 p. Series: Current therapy series. Includes Symptomatic treatments for Huntington's disease. ISBN: 0801677300

Elliott, Wendy. Living with Juvenile Huntington's Disease. Huntington Society of Canada, 1993, 67 pages.

Final report of the Coordinating Council on Alzheimer's Disease and Related Disorders : submitted in compliance with Joint Resolution no. 2 of the 1987 session of the General Assembly. [Baltimore, Md.] : Medical Care Policy Administration, Dept. of Health and Mental Hygiene, 1991. 49 p.

Gray, Alison. Genes and Generations: Living with Huntington's Disease.Wellington Huntington's Disease Association, 1995, 195 pages.

Greene, Rickey. You Are Not Alone: A Guide to Establishing Huntington's Disease Support Groups. HDSA, New York, 1992, 56 pages.

Huntington's Disease. Edited by Peter S. Harper. Series: Major Problems in Neurology, v. 22. Philadelphia: W.B. Saunders, 1991.

Karlen, Richard R. Devil's dance. Scotch Plains, New Jersey : Ironbound Press, 1998, 281 p. ISBN: 0-9660831-0-5. Fiction. For a review, see http://www.lib.uchicago.edu/~rd13/hd/devils.html

Leal-Pock, Carmen. Faces of Huntington's. Belleville, Ontario, Canada : Essence Publishing, 1998, 363 p. ISBN: 1-894169-10-7. Music CD also available. For information, see http://writerspeaker.com/faces.html

Molecular and cell biology of neuropsychiatric diseases. 1st ed. London : Chapman & Hall, 1994. x, 201 p. Series: Molecular and cell biology of human diseases series ; v. 4. Includes bibliographical references and index. ISBN: 0412478005

Neurodegenerative diseases. Philadelphia : W.B. Saunders Co., 1994. xviii, 954 p. Includes bibliographical references and index. ISBN: 0721643493

Parker, James Hill. Health care and freedom : an American dilemma. Brooklyn, N.Y. : Long Island University, 1994. xii, 75 p. ISBN: 081919302X (cloth : acid-free paper) 0819193038 (paper : acid- free paper) Personal narrative about nursing home care for Huntington's Disease patient.

Paulsen, Jane S., Understanding Behaviors in Huntington's Disease. Huntington Society of Canada, 1999.

Paulsen, Jane S. Understanding Behavior in Huntington's Disease. 2nd ed. [New York] : Huntington's Disease Society of America, Inc., 1999. 46 p.

Pollard, Jim. A Caregiver's Handbook for Advanced-Stage Huntington Disease. Cambridge, Ontario, Canada : Huntington Society of Canada, 1999, 56 p. For a review, see http://www.lib.uchicago.edu/~rd13/hd/caregive.html
There is also a copy available online at: http://table.jps.net/~wuf/ch

Ranen, Neal G. A physician's guide to the management of Huntington's disease : pharmacologic and non-pharmacologic interventions. New York : Huntington's Disease Society of America, 1993. ix, 45 p. Published with funding from the Foundation for the Care and Cure of Huntington's Disease. Includes bibliographical references (p. 44-45). ISBN: 0963773003 (pbk.)

Ranen, Neal G., Carol Peyser, Susan Folstein. Una Gu�a M�dica para el Manejo de la Enfermedad de Huntington: Intervenciones Farmacol�gicas y No Farmacol�gicas. HDSA, 1993, 47 pages. Spanish translation of A Physician's Guide to the Management of HD.

Rosenblatt, Adam, M.D., Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, Ph.D., A Physician's Guide to the Management of Huntington's Disease. 2nd ed. [New York] : Huntington's Disease Society of America, �1999. 85 p. For a review, see http://www.lib.uchicago.edu/~rd13/hd/physicia.html

Rubalcaba, Jill. Saint Vitus' dance. New York : Clarion Books, 1996. Fourteen-year-old Melanie must come to terms with her mother's incurable illness and the possibility that she herself may develop the disease.

Rubinsztein, D.C. and Hayden, M.R., Analysis of Triplet Repeat Disorders. Oxford: Bios Scientific Publishers, 1998.

Sanberg, Paul R. Cell transplantation for Huntington's disease. Austin : R.G. Landes, 1994. 124 p. Series: Medical intelligence unit. Includes bibliographical references and index.

Sawyer, Robert J. Frameshift. New York : Tor Books, 1997. ISBN: 0-312-86325-X (hardcover), 0-812-57108-8 (paperback). Science fiction. For a review, see http://www.lib.uchicago.edu/~rd13/hd/frame.html

Understanding Huntington's Disease: A Resource for Families. Huntington Society of Canada, 1995.

Watt, David C. A clinico-genetic study of psychiatric disorder in Huntington's chorea. Cambridge [England] ; New York, N.Y. : Cambridge University Press, 1993. 46 p. Series: Psychological medicine. Monograph supplement ; v. 23. Includes bibliographical references.

Wells, Robert D., Warren, Stephen T., Sarmiento, M., Eds., Genetic Instabilities and Hereditary Neurological Diseases. San Diego: Academic Press, 1998.

Werbel, Eileen. Toward a fuller life: a guide to everyday living with Huntington's Disease. New York : Huntington's Disease Society of America, 1990. Looseleaf. Published with funding from the Foundation for the Care and Cure of Huntington's Disease.

Wexler, Alice. Mapping fate : a memoir of family, risk, and genetic research.New York : Times Books : Random House, 1995. xxv, 307 p. Includes bibliographical references and index. ISBN: 0812917103

Wexler, Alice. Mapping fate : a memoir of family, risk, and genetic research. Berkeley : University of California Press, 1996. Paperback. ISBN: 0520207416

Yesley, Michael S. Bibliography: ethical legal & social implications of the Human Genome Project.Washington, D.C. : [Springfield, VA : U.S. Dept. of Energy, Office of Energy Research ; Available from National Technical Information Service], 1993. iii, 265 p. "DOE/ER-0591."

Yorkston, Kathryn M. Management of speech and swallowing in degenerative diseases.Tucson, Ariz. : Communication Skill Builders, 1995. xvi, 253 p. Includes bibliographical references and index.


Created by Renette Davis. Send comments to Renette by clicking here.

Created: July 4, 1996
Last updated: Dec 1, 2010