Reviews of Resources on Huntington's Disease

Compiled by Renette Davis

Amarillo by Morning

A Harlequin book by Bethany Campbell. The main character is at-risk for Huntington's Disease.

Beyond the City of Swords

Wonderful science fiction story about love by Marian Michener

A Caregiver's Handbook for Advanced-Stage Huntington Disease

An excellent book which is full of practical information on caring for someone with Huntington's Disease. By Jim Pollard, et. al.

Caresharing : A Reciprocal Approach to Caregiving and Care Receiving in the Complexities of Aging, Illness or Disability

Although not specifically about Huntington's Disease, this is a wonderful resource for anyonewho is caring for someone with HD. By Marty Richards.

Could I Have This Dance?

A combination love story, mystery, & religious book by Harry Kraus, M.D.

Devil's Dance

A novel by Richard R. Karlen about two brothers, one of whom has Huntington's Disease.

Do You Really Want to Know?

Award winning documentary which explores the complex issues of genetic testing for Huntington's Disease.

Faces of Huntington's

A wonderful book by Carmen Leal-Pock of stories and poems by and about people with Huntington's Disease.


A science fiction story by Robert J. Sawyer, in which one of the main characters has Huntington's Disease.

Genome: The Autobiography of a Species in 23 Chapters

A fascinating book about our chromosomes and how they affect our lives. By Matt Ridley.

House of Earth

Book by Woody Guthrie, written in 1946 and 1947 but not published until 2013

Inside the O'Briens

Wonderful book by Lisa Genova, New York Times bestselling author of "Still Alice", which was about a woman with early onset Alzheimer's. This book is about a tough Boston police officer who is diagnosed with Huntington's Disease.

It's a Bird

Graphic novel about a comic book writer who deals with Huntington's Disease. By Steven T. Seagle (writer) and Teddy Kristiansen (artist)

Mapping Fate

A Memoir of Family, Risk, and Genetic Research. By Alice Wexler.

A Partial History of Lost Causes

In her debut novel, Jennifer duBois tells two stories. One is of Aleksandr, a young man in Russia who becomes a chess champion, and the other is Irina, a young woman in the United States who has tested positive for Huntington's Disease. Reviewed by Renette Davis.

A Physician's Guide to the Management of Huntington's Disease

Informative book which is geared toward physicians who are treating patients with Huntington's Disease, but is written such that it can also be easily understood by the patients' family members and friends. By Adam Rosenblatt, M.D., Neal G. Ranen, M.D., Martha A. Nance, M.D., and Jane S. Paulsen, Ph.D.

Red the Rose, Sharp the Thorn

Story of a man who had Huntington's Disease, and his wife who cared for him until his death. By Elton and Lorene Archer.

Saint Vitus' Dance

Book for young people about a 13-year-old girl whose mother has Huntington's Disease. By Jill Rubalcaba. Reviewed by Renette Davis.

Someone Else's Life

Story of two teenage girls, Rosie and Holly, who were swapped at birth. Rosie was brought up by Trudie, a woman who has Huntington's Disease. By Katie Dale.


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Created: June 14, 1996
Last updated: April 17, 2015