Message from the President

By Barry Kahn

From the Fall/Winter 2003 issue of Hopes & Dreams, newsletter of the Illinois Chapter, Huntington's Disease Society of America.

The start of 2004 brings with it reasons for Hope. As Dr. Martha Nance recently stated at the Wisconsin HDSA Annual Conference, “We are going in a hundred directions looking at a hundred ideas.” Hope exists because 80 research centers throughout the world are currently studying the disease. Hope exists because 300 neurologists are currently testing trial drugs on HD patients and quantifying their effects on the disease. Results of these trials will be made public after they are analyzed and evaluated.

I’m sure you know that research studies and clinical trials are costly. It is with that in mind that your Board of Directors is planning various fundraisers throughout the year. Your participation will help make these events a success and allow us to do our part in the fight against HD.

Some other reasons to Hope are:

- A continued effort on our part to bring a Center of Excellence to the Chicago area as soon as possible.
- A heartfelt thank you to an anonymous donor who has made it possible for some deserving HD patients and their caregivers who cannot afford to attend this year’s National Convention in St. Louis the opportunity to do just that (see article in this newsletter).
- A commitment from Mia Bergman, Ph.D. to become a member of our Board of Directors.

For HD patients and their families – there is a reason to Hope. We will not give up the fight to make this The Last Generation with HD.

Barry Kahn, President - Illinois Chapter


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Created: Jan. 23, 2004 Last updated: Nov. 14, 2010