Last year Bill had all of his teeth pulled (abscessed). He has difficulty chewing and some difficulty swallowing soup-like consistency. He needs to have his chin tucked slightly to avoid aspiration. We thicken thin fluids with Thick-it and we thin out foods that are too thick with cream or butter or water.
I use a Betty Crocker small baby food processor to puree all food. He eats the food right out of the processor so the food does not get a chance to cool down if it is supposed to be hot.
Bill likes to stand and watch me cook. I have to hold him with one hand since he is unsteady. He usually wants a pancake or French toast for breakfast - he decides. We cook this with one egg and heavy cream in oil. Then we add butter to the pancake! It must be over 500 calories. Bill can only eat about 10-15 bites and then he is tired.
Midmorning he eats his second breakfast of cheese/egg omlette - again made with heavy cream and butter and a slice of cheese. This too has to be pureed. If we are in a restaurant we can chop it up with a fork and eat it with the spoon. The other choice for midmorning is an eclair or donut of his choice - pureed with heavy cream.
For lunch he eats the same thing every day: Balogna, cheese slice, bread, and mayonnaise, all pureed. Lately we had to put a little water in to get the thickness to be less.
He likes to discuss dinner options which include: spaghetti and meatballs, chili, taco, etc. - a small number of choices and he decides.
The day is always topped off with a mighty sundae with instant whipped cream, etc. He drinks either apple juice (we need metamucil twice a day in there) or chocolate milk made with lots of heavy cream.
Bill is maintaining his 120 lbs with this regime (he is 5'4"). I counted out his calories at 2,500 per day. I have tracked Bill's weight at the nursing home where he is for three days each week, and he loses 1-2 pounds every time.
Following are some ideas which we use for Bill:
I mentioned it to my doctor who he is a gerontologist and he said that he knows patients who live on cheese curls.
Bill loves to help cook so he cooks the fudge with me. Lately he cooked up a batch for his sister who also has HD and sent it to the nursing home and she has also enjoyed it. We sent the fudge to her with a spoon taped to the block because I know that in nursing homes they only have those weak plastic spoons that are frustrating. His sister really appreciated a homemade present - so useful too and with pleasure associated with it.
Cooking your own fudge is so much cheaper too!!
We have fudge available at a table and whenever Bill walks by he takes a bite. Only trouble is he drips chocolate flavored saliva - we have tissue papers every few feet. We cut off a piece of fudge with a spoon and that worked well when the fudge was too liquid. However, now that we have perfected our fudge cooking and it comes out more firm, Bill prefers to get a small sliver which is taken off with a spoon and then fed with the finger. He cannot get the fudge off the spoon very well with his lips.
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Last updated: Nov. 28, 2010